I Had Asymmetric Tubular Breasts; My Breastfeeding Story

Written By: Rachel

 As a young girl, I knew something was wrong with my breasts when they began to develop.   I had asymmetric tubular breasts, and it quickly became my biggest insecurity. At the age of 20, I saw a doctor who told me a breast augmentation would “fix” them. Trusting her medical opinion I had breast augmentation surgery. Now they were double the size and sagging from the weight of the implants. It was worse than what they originally were, making my anxiety and insecurities heightened. After a few years, I decided to get them removed by another doctor who specializes in reconstruction surgeries. I got the implants taken out, a lift of the skin and fat removed from my stomach to fill the empty pouches. With two surgeries comes many scars and of course trauma to the breast tissue. 

What are Tubular Breasts

“Tubular breasts” is the name of a condition caused by breast tissue not proliferating properly during puberty. The condition is also called tuberous breasts or breast hypoplasia.

While not extremely common, tubular breasts cannot be considered rare because many women don’t seek treatment. While tubular breasts don’t pose any direct threat to your health, some womenmay seek to correct it. Tubular breasts can also present problems for women who wish to breastfeed. (source Healthline)

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The Loss Of Our Son Has Devastated Our Family – This Time I Will Be Supplementing With Formula After Every Nursing session

I had a beautiful, healthy pregnancy with Bryson, with the help of Clomid (a fertility drug), like my first pregnancy with my daughter. After about 31 hours of induced labor, Bryson was here. Seven pounds, twelve ounces, and seemingly healthy! He latched like a champ immediately, and we had zero complications of any sort while in the hospital. He had wet and dirty diapers and was breastfeeding well, every 2–3 hours. His discharge weight was 7 lbs, and I had a follow-up appointment scheduled for two days later.

NEWT is the first tool that allows pediatric healthcare providers and parents to see how a newborn’s weight during the first days and weeks following childbirth compares with a large sample of newborns, which can help with early identification of weight loss and weight gain issues. Bryson was discharged with a weight loss of 9.7 percent at 36 hours of age. The NEWT graph indicates his weight loss was excessive.

The first two days at home were easy. He was a sleepier baby than my daughter was, and unless wet or hungry, he was calm. I continued to breastfeed him for 20 minutes every three hours as instructed. I did begin to notice that his newborn onesie seemed quite big on him. His wet diapers did slow down on the third day, and he hadn’t pooped since the third day either. At two in the morning on July 29th, at four days postpartum, I tried to breastfeed again, but he was just too sleepy to nurse, and he would not latch no matter how hard I tried. I tried so many times, different ways, different positions. I thought he would eventually latch but he just wanted to sleep. I thought, well I can’t force-feed him, so I’ll try again after he rests a little more. I tried several times after that, and he was just less and less interested.  He had started to get pale and lethargic. It was also the day of his two-day post discharge checkup at the hospital, so I decided to take him in early, since I was getting concerned. 

During the whole drive there, I felt in my heart that time was of the essence. After the nurse checked him, she said he would have to be admitted, as he didn’t look too good, and his weight had dropped to 6 lbs 9 oz; he had lost over a pound in the four days since his birth. She turned her back, and I noticed he stopped moving. I hesitantly asked, “Is he breathing?” She turned around and yelled, “no!” then fumbled and fumbled to open a plastic bag; I finally screamed at her: “do something!” She picked him up and ran him down the hall. 

Bryson’s weight loss was 22 percent.

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I Begged for Food for my Baby and I Begged for Nipple Relief at my BFHI Hospital

It was on December 13th at 2:30 in the morning. My water broke as I was sleeping. I woke my husband up and the panic set in. My son was a scheduled C-Section due to the fact he was breech and he was going to be a big baby according to all the scans. I was scheduled for the 18th, which was my birthday, but he decided to come early. My husband and I rushed to St. Joseph’s Hospital in Tacoma, WA. This hospital was a “Baby-Friendly” hospital, which meant they push things like exclusive breastfeeding, no pacifiers, and no nurseries. I didn’t think much of these things at the time, as I was a first-time mom and hadn’t pondered on them much. On paper, this all sounded great, and I was excited to go there. I had a simple birth plan: no circumcision and I wanted my husband in the operating room. That was it really. I trusted the doctors and nurses there to help me out.

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My Baby Went Through Hell And Suffered Needlessly From Starvation

Jenn T.

My son was born on February 18, 2019. He was 6 lbs 10 oz and had a little trouble regulating his temperature at birth. But after 24 hours, he was okay. I was always told breast was the best way to go. I never breastfed my 9 year old so this was my first experience with it.

My son had latching issues at first and it caused major pain and bleeding. But after latch correction and using nipple shields, the pain dissipated. When we left the hospital, my son weighed 6 lbs (9.3 percent weight loss) and at his checkup the next day, he had gained half an ounce.

At home I was feeding straight from my breasts, every time. My son was content and seemed happy.  He smiled and was great the entire time, so I thought. I didn’t pump to see how much milk I had because the hospital where I delivered told me pumping in the first 6 weeks could cause confusion for the baby with latching.

Now fast forward to when he was 21 days old. He had his three week checkup and he was extra sleepy that morning. When we got to the doctor, and not only did he lose weight, (down to 5.5 lbs), but he also had a temperature of 92 degrees. He was hypothermic! So they sent us urgently to the children’s hospital in Nashville. Continue reading

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How I Learned That Fed is Best

by Jen Gamarano

I hate to admit it, but before I got pregnant, and even when I was pregnant, I was already a judgmental mom. I started watching documentaries about natural birth and breastfeeding years before I even entertained the idea of having children because it fascinated me. Women’s bodies are amazing. We are capable of growing, birthing, and feeding a brand new life and I was on board for doing all of it naturally because biology is perfect and I was made to do this – or so I thought. I looked at moms who opted for epidurals and thought “If only they knew about natural birth and how amazing it is”, or those who formula fed and thought  “How sad” because breast milk is magical and formula will never be able to measure up. I hate to admit these things, but I have to admit them so you know just how much this journey has changed me.

Our birth plan was simple – deliver at the birth center with our doula and midwife, stay there for four hours, go home, breastfeed forever, be happy. I’m lucky to have had a fairly short labor of nine hours, but afterwards was nothing like I’d imagined. I ended up transferring to the hospital to repair a third degree tear. Lovely, I know.

We started to breastfeed at the hospital, and it hurt like they all said it would. L. had trouble latching but he was still nursing so I just tried to be patient. I had a rough first few days as my body tried to balance out hormones. I was shaky, hot, sweaty, mad, sad, and all-around miserable. I called the midwife who told me this was normal and advised me to stay in bed and “breastfeed, breastfeed, breastfeed”. So I did. The next day, my son started crying like crazy when I tried to latch him, and refused to nurse for a full 24 hours. The pediatrician told us to supplement with formula and I gave in because I felt sick, tired, and good lord, I wasn’t going to starve my child.

“The next day, my son started crying like crazy when I tried to latch him, and refused to nurse for a full 24 hours.The pediatrician told us to supplement with formula and I gave in because I felt sick, tired, and good lord, I wasn’t going to starve my child.”

When he finally started to latch again, it was clear that I didn’t have enough for him. He would get sleepy after only a few minutes of nursing, sleep for a few minutes, and then wake up crying and wanted to eat again. I spent a couple days feeding him every 15 minutes and didn’t wear a shirt or see anyone during that time. I met with a lactation consultant who listed a whole slew of things that could potentially be wrong with him. I also learned that I had an infection on my nipple and he developed thrush, which made all of this infinitely more complicated and painful. I was still determined to breastfeed, so we saw two lactation specialists, an ENT and Osteopath to evaluate the little guy, and I tried every natural remedy in the book. I took supplements and tinctures, drank dark beer, pumped multiple times in an hour, saw another lactation specialist, ate almonds, stayed hydrated, pumped, nursed, pumped, nursed, until I just couldn’t do it anymore. I got to the point where I just said without emotion “tried it” whenever someone gave me advice to increase my supply. I was exhausted. I woke up to pump every morning and sobbed because I would only get dribbles and my baby just wasn’t getting that ever so magical breast milk despite all my best efforts.

I’ve heard so many different opinions about my son and I on our journey that I don’t think I can definitively say what the root cause of all of this was. The opinion that made me feel the most at ease was from our ENT who flat out said that not every baby is a fit for every breast. Until then, I’d been conditioned to think that since I was a woman, breast feeding would be the most natural thing I’ve ever done. I forgot in all of this that all humans are different and that’s part of the beauty of life. I had to stop blaming my baby, and I had to stop blaming myself for “failing” at this. I had to give up the notion that this was, in fact, a failure, because it wasn’t.

This journey made me bake myself an entire humble pie and eat every last crumb. I started to look at breastfeeding and motherhood from a much different perspective. I came to terms with the fact that feeding my baby formula and the tiny bit of breast milk I did have was infinitely better than having a baby that couldn’t thrive and a sobbing mommy. I became grateful that I live in a time where formula exists to provide nourishment to my child.

“I became grateful that I live in a time where formula exists to provide nourishment to my child.”

Every mom out there is incredible. I’m proud of moms who breastfeed exclusively. I’m proud of moms who use formula. I’m proud of moms who do both. I’m proud of moms who have natural birth. I’m proud of moms who use modern medicine to take away the horrible pain. I’m proud of every mom who chooses to do the best thing for her baby and herself. The sisterhood of motherhood is incredible and I’m grateful to be a part of it and share my story.


HOW YOU CAN SUPPORT FED IS BEST

There are many ways you can support the mission of the Fed is Best Foundation. Please consider contributing in the following ways:

  1. Join the Fed is Best Volunteer group to help us reach Obstetric Health Providers to advocate for counseling of new mothers on the importance of safe infant feeding.
  2. Make a donation to the Fed is Best Foundation. We are using funds from donations to cover the cost of our website, our social media ads, our printing and mailing costs to reach health providers and hospitals. We do not accept donations from breast- or formula-feeding companies and 100% of your donations go toward these operational costs. All the work of the Foundation is achieved via the pro bono and volunteer work of its supporters.
  3. Share the stories and the message of the Fed is Best Foundation through word-of-mouth, by posting on your social media page and by sending our resources to expectant moms that you know. Share the Fed is Best campaign letter with everyone you know.
  4. Write a letter to your health providers and hospitals about the Fed is Best Foundation. Write them about feeding complications your child may have experienced.
  5. Print out our letter to obstetric providers and mail them to your local obstetricians, midwives, family practitioners who provide obstetric care and hospitals.
  6. Write your local elected officials about what is happening to newborn babies in hospitals and ask for legal protection of newborn babies from underfeeding and of mother’s rights to honest informed consent on the risks of insufficient feeding of breastfed babies.
  7. Send us your stories. Share with us your successes, your struggles and every thing in between. Every story saves another child from experiencing the same and teaches another mom how to safely feed her baby. Every voice contributes to change.
  8. Send us messages of support. We work every single day to make infant feeding safe and supportive of every mother and child.  Your messages of support keep us all going.

Donate to Fed is Best

Thank you so much from the Founders of the Fed is Best Foundation!

My Baby Went Through Hell And Suffered Needlessly From Starvation

 

My Baby Suffered And Almost Died–Why Are The Risks Of Exclusive Breastfeeding Not Taught To Mothers?

Nurses Are Speaking Out About The Dangers Of The Baby-Friendly Health Initiative

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What Should Be The Norm For All: I Was Supported in Supplementing My Twins With Formula

by Kimberly Cartwright

My story is unremarkable but important to tell, because we are often led to believe that it should be remarkably rare.

In 2013 I had my first child, a son.  I researched and knew I wanted to breastfeed him, as breast milk is the recommended food for babies.  There are so many benefits to baby and mother if you nurse, so of course I wanted to try it out.   I have to admit that was a big push to learn all about it and make it work; and we did make breastfeeding work for fourteen months.  Then in 2016 I had my second and third children, my twin daughters.  I knew I wanted to breastfeed again.  The cost benefit for me personally was huge, especially for two babies.  But nursing two babies at once–that’s a lot!  There are a lot of reasons breastfeeding doesn’t work, and you double those when there are two babies.  I was determined to do my best though.

My girls were born at 36 and a half weeks.  Early by the forty week schedule, but basically on time for twins.  (Full term for twins is considered 37 weeks.)  They were right on target for identicals.  I was worried they wouldn’t be able to latch or just wouldn’t nurse well.  Imagine my relief when shortly after both girls were born, they both latched right on and were nursing away.  They knew what to do and we didn’t have any problems.  The only issue was with their blood sugar.  They were still a bit early and of course small.  As per the protocol of the hospital I was at, the girls had to have their blood sugar checked with every feed.  They did pretty well, but their numbers weren’t as high as the doctors and nurses would have liked.  The nurses offered me a simple solution–after I nursed we were to give the girls supplemental formula.  It can take a few days for a mother’s milk to come in.  Yes, my girls were getting colostrum, but we were concerned that I wasn’t able to provide enough in terms of volume for two babies. For the two days we were in the hospital we offered enough formula after each nursing session to keep their blood sugar levels normal and safe.  Once we got the girls home my milk came in. Fast forward thirteen months later and we are still nursing. Continue reading

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