Category: Landon’s Legacy

Fed is Best Foundation Presentation to WHO Officials on Breastfeeding Complications, Hospitalizations, Brain Injury and Disability

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Christie del Castillo-Hegyi, M.D., Co-Founder

On Sept. 22, 2017, senior members of the Fed is Best Foundation, and guests including a neonatologist from a leading U.S. tertiary care hospital who wished to remain anonymous and a pediatric endocrinologist, Dr. Paul Thornton, M.D, from Cook Children’s Hospital Fort Worth, lead author of the Pediatric Endocrine Society’s newborn hypoglycemia guidelines met via teleconference with top officials of the WHO Breastfeeding Program: Dr. Laurence Grummer-Strawn, Ph.D., Dr. Nigel Rollins, M.D. and Dr. Wilson Were, M.D. to express their concerns about the complications arising from the BFHI Ten Steps and to ask what, if any, monitoring, research, or public outreach the WHO has planned regarding the risks of accidental starvation of exclusively breastfed newborns. The Foundation members who attended were 1) Christie del Castillo-Hegyi, MD, Co-Founder, 2) Jody Segrave-Daly, RN, IBCLC, Co-Founder, 3) Julie Tibbets, JD, Partner at Alston & Bird, LLP, Pro-Bono Attorney for the Foundation, 4) Brian Symon, MD, Senior Advisor, and 5) Hillary Kuzdeba, MPH, former quality improvement program coordinator at a childrens hospital , managing infant feeding projects and Senior Advisor.

This is a video of the presentation given to the WHO officials:

We believe all babies deserve to be protected from hunger and thirst every single day of their life and we believe that education on Safe Infant Feeding should be free. If you would like to make a donation to support the Fed is Best Foundation’s mission to teach every parent Safe Infant Feeding, please consider making a one-time or recurring donation to our organization.

Donate to Fed is Best

 

Thank you from the Fed is Best Foundation!

 

 

Dear Doctors: Just One Bottle Would Have Let Landon See His First Day of Kindergarten

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Written by Jillian Johnson

Dear Doctors,

My name is Jillian Johnson and I am speaking to you on behalf of The Fed Is Best Foundation. I am mother to Landon Johnson of Landon’s Legacy. Landon was my firstborn son who died because he was starving while exclusively breastfeeding.

LandonP5

Today has been a very bittersweet day for me. My littlest babe turned two. And while we celebrated from the moment she awoke to the moment she laid her head down for the night, I couldn’t help but feel a bit sad. You see, today, my sweet Landon should have started his first day of Kindergarten. I should have been able to make him a special breakfast, pack his backpack, and walk him to his classroom for the first time. I should have been able to meet his teacher and new friends. Today, I should have packed his lunch and left a sweet note like, “You’re going to be amazing today!” But, I do not get to. As I made my daughter her birthday breakfast, my heart ached knowing we have an empty seat at the table that should be filled. As I baked her cake with her older sister, I knew there should be an extra set of hands helping me stir the batter and fight over who got to lick the spoon. I’ve always looked forward to being able to create the “my first day” sign for my children, and as I made Landon’s today, I couldn’t fill in the blanks. So I wrote this letter instead–requesting that medical professionals step up and help fight for change, and support the cause that would have saved my son’s life. Continue reading →

If I Had Not Found The Fed Is Best Foundation, I May Not Be Holding My Sweet Baby Boy Today

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AshleyCoverPageI power pumped.  I took fenugreek. I baked lactation cookies. I cried, and cried some more. I baby wore. Skin to skin. Nursed on demand non-stop. I never slept. Never bathed, and cried some more. I was told over and over I was producing enough milk, that my body knows how much to produce to meet my baby needs.

I posted these pictures to a well known exclusive breastfeeding Facebook group. I was praised for how great I was doing and to keep it up.  I was told my body made enough for my baby and this amount (1.5 ml) was enough. That he was “cluster-feeding”.

Stomach20ml Continue reading →