If I Had Given Him Just One Bottle, He Would Still Be Alive.

by Jillian Johnson with commentary from Dr. Christie del Castillo-Hegyi

Landon would be five today if he were still alive. It’s a very hard birthday–five. It’s a milestone birthday. Most kiddos would be starting kindergarten at this age. But not my little guy. I wanted to share for a long time about what happened to Landon, but I always feared what others would say and how I’d be judged. But I want people to know how much deeper the pain gets.

I share his story in hopes that no other family ever experiences the loss that we have.

Jarrod and I wanted what was best for Landon, as every parent does for their child. We took all of the classes. Bought and read all of the books. We were ready! Or so we thought….every class and book was geared toward breastfeeding and how it’s so important if you want a healthy child. Landon was born in a “Baby-Friendly” hospital. (What this means is everything is geared toward breastfeeding. Unless you’d had a breast augmentation or cancer or some serious medical reason as to why you couldn’t breastfeed, your baby would not be given formula unless the pediatrician wrote a prescription.)

Continue reading

From a Pediatric Nurse Practitioner, “You Are Not Alone.”

Among the most vulnerable moms are those who are most educated in exclusive breastfeeding. Because we are trained to fully believe in the guidelines recommended by health organizations and because mothers are not educated about the complications of underfeeding, we can miss serious signs of newborn starvation. Rachel is a Pediatric Nurse Practitioner. She would like to share her story so that other mothers and babies do not have to suffer.

As long as I can remember, I wanted to be a mom. Fresh out of nursing school, I started out as a neonatal nurse in the ICU. I watched the tiniest of babies get fed through tubes. We carefully monitored their weight every day, eventually most would go home, happy and healthy. A few years later, I became a Pediatric Nurse Practitioner and saw babies in an outpatient setting as a primary care provider. I would monitor babies’ weights and help moms through their struggles with breastfeeding and feeding in general.

When it was finally my turn to become a new mom last October. I figured “I got this!” I took all the breastfeeding classes I could, received a ton of breastfeeding supplies and even bought a really expensive nursing chair. I was blessed with a very healthy pregnancy and “normal delivery,” my son even came on his due date of all days. When he came out, we did skin-to-skin for about 20 minutes before they took him and weighed him, 8 lbs 15 oz! They brought him back to me, but my son, Hunter, didn’t “latch on” right away as they told me he would in the classes.  He didn’t even “look for my breast.” By time we got into our recovery room, I ate (I went 24 hours without eating, I was starved after labor!), it was about 4 hours after delivery before Hunter finally latched on. The night nurse came into my room to help me breastfeed my son for the first time and I remember her pulling at my nipple “to get it to flowing.” The pain from the tugging and pulling was nothing like I have ever experienced before. It hurt and very badly too! All of this, only to get out a tiny drop of “liquid gold” as they so often call it. I remember him crying and getting frustrated because nothing was coming out. I could barely hold him because I still had an IV in my left wrist and it was painful to get him into the best position. “It’s ok,” the nurse said, “he can go a while without eating, his tummy is so small.”

Continue reading

Dejar hambriento a mi bebé accidentalmente me rompió mi corazón, pero me hizo querer ayudar a otras mamás

En un mes, su bebé ganó media onza y amamantó durante horas al día.

Cuando nuestro hijo nació, pesó 6 libras 5 onzas, y tuvimos problemas para que él se conectara al pezón desde el principio. Parte del problema era que tenía pezones planos, por lo que la enfermera nos dio un protector de pezón y me mostró cómo usarlo, y parecía que él estaba mucho mejor. Parecía ser un bebé muy contenido y alerta. Durante nuestra estancia en el hospital perdió casi el 10 por ciento de su peso al nacer y nos dieron de alta para ver a nuestro pediatra para el seguimiento.

Seguimos usando el protector de pezón porque él realmente tenía dificultades para conectarse sin el mismo, y nos dijo que lo usáramos de nuevo si realmente se frustraba tratando de conectarse. Comencé a notar que el protector estaba lleno de leche cuando terminaba. También me di cuenta de que él quería comer durante largos períodos de tiempo y no parecía estar satisfecho durante o después de las alimentaciones.

Continue reading

Starvation- and Jaundice-related Brain Injury, Autism and What Science Does and Doesn’t Say

Written by Fed is Best Co-Founder, Christie del Castillo-Hegyi, M.D.

Professionals in the medical community and parents have asked questions regarding whether or not newborn starvation from insufficient exclusive breastfeeding is linked to Autism Spectrum Disorder (ASD) in children and what research has been done regarding a possible connection.

The short answer is no. There is no definitive linkage, and we don’t have clear answers when we’re queried about this fact – because in fact, the science is not entirely clear on this point.

Continue reading

Fed is Best Foundation Charm Fundraiser

We are the Fed Is Best Foundation and we thank you for visiting our page and supporting our work with your donation! Your donation of any size is greatly appreciated – and will help us meet our goals and work to ensure that all babies are fed and nourished with safe, evidence-based practices.

A special bonus for this fundraiser is that gifts of $20 or more get a special thank you! #FedIsBest Advocates donating $20 and up will receive a #FedIsBest charm (only available here!) just in time for the holiday season.

Proudly show your support for all parents and feeding methods and help us reach our goal to ensure all babies are fed and nourished in the ways that are best for them and their families.

You can donate by clicking here for our Indiegogo fundraiser tool:

[maxbutton id=”2″]

#Fedisbest!

Continue reading